PATIENT’S JOURNEY
Bringing the patient perspective
A collection of patient stories about AK showcases resilience, courage, and community strength. Engaging with these narratives through watching videos in YouTube or Tiktok, listening to Podcasts, or reading articles can provide comfort and inspiration. Joining one of our support groups offers a safe space for sharing experiences and gaining insights. Together, a network of care and compassion can uplift individuals facing AK challenges.
Videos – YouTube
Keep water away from contact lenses
I put my life on hold
So much pain I wanted to pull my eye out
Storing my contact lenses in water
Rinsing my contact lenses in water
Keep water away from contact lenses
Videos – TikTok
Podcast
Articles
“‘Haal dat oog er maar uit, zei ik’” Harmien Huijbens | Netherlands |
“Most Pain I’ve Ever Experienced” Brooklyn McCasland | United States |
“After two weeks I woke up one morning and couldn’t see anything, because of showering with my contacts” Greg Block | United States |
“One year ago, I went blind in one eye from wearing contact lenses in the shower” Rachel Prochnow | United States |
“I’m 26 and Almost Lost My Eye After Showering in My Contacts” Emily Leath | United States |
“Went swimming with my contact lenses and end up having a parasite in my eye” Juliette Vila Sinclair Spence | Netherlands |
“Touching my contact lens with a wet hand left me blind in one eye” Charlotte Clarkson | United Kingdom |
“They applied toxic drops every hour, so I did not sleep very much for 18 days” Amanda Eckersley | New Zealand |
“I was blinded by my contact lens” Irenie Ekkeshis | United Kingdom |
“I could not explain one pain like this in my life” Mike Krumholz | United States |
“Right now, I’m pretty much blind, besides sensing light and dark in my right eye” Vivian Luo | United States |
“A waking nightmare, the worst pain I’ve ever felt in my life” Sydney | Australia |
“It felt like somebody was snapping rubber bands in my eye nonstop with the back of the eye feeling like it was going to blow out” Stacey Peoples | United States |
“L’Incubo Acanthamoeba: la mia storia” Alberto | Italy |
