patient stories
Real Voices. Real Journeys. Real Strength.
These stories express the patient voice throughout the AK journey, offering a genuine look at how the disease affects individuals and families. They form the heart of the patient perspective and help deepen understanding of AK’s impact across different lives — far beyond the common misconception that it is “just an eye infection.
Videos – YouTube
Please remove my eye – I can’t take it anymore
Keep water away from contact lenses
I put my life on hold
So much pain I wanted to pull my eye out
Storing my contact lenses in water
Rinsing my contact lenses in water
Keep water away from contact lenses
Videos – TikTok
Articles
A blinding parasitic eye disease affects mostly contact lens wearers. Here’s how to avoid it  Kristen Rogers | CNN | United States |
“‘Een nieuw hoornvlies? Eng, maar slechter kon het niet worden’’  Harmien Huijbens | Netherlands |
“‘Haal dat oog er maar uit, zei ik’”  Harmien Huijbens | Netherlands |
“Most Pain I’ve Ever Experienced”  Brooklyn McCasland | United States |
“After two weeks I woke up one morning and couldn’t see anything, because of showering with my contacts” Greg Block | United States |Â
“One year ago, I went blind in one eye from wearing contact lenses in the shower” Rachel Prochnow | United States |Â
“I’m 26 and Almost Lost My Eye After Showering in My Contacts” Emily Leath | United States |
“Went swimming with my contact lenses and end up having a parasite in my eye” Juliette Vila Sinclair Spence | Netherlands |Â
“Touching my contact lens with a wet hand left me blind in one eye” Charlotte Clarkson | United Kingdom |Â
“They applied toxic drops every hour, so I did not sleep very much for 18 days” Amanda Eckersley | New Zealand |
“I was blinded by my contact lens” Irenie Ekkeshis | United Kingdom |
“I could not explain one pain like this in my life” Mike Krumholz | United States |Â
“Right now, I’m pretty much blind, besides sensing light and dark in my right eye” Vivian Luo | United States |Â
“A waking nightmare, the worst pain I’ve ever felt in my life” Sydney | Australia |Â
“It felt like somebody was snapping rubber bands in my eye nonstop with the back of the eye feeling like it was going to blow out” Stacey Peoples | United States |
“L’Incubo Acanthamoeba: la mia storia” Alberto | Italy |
