Sharing Knowledge to Empower

Trusted resources to support understanding, collaboration, and better outcomes

Explore a curated collection of trusted resources on Acanthamoeba Keratitis. This page brings together guides, registries, clinical tools, scientific publications, videos, and interactive learning materials to support understanding and progress. Whether you’re a patient, researcher, or healthcare professional, it offers a clear starting point for staying informed and deepening your knowledge of AK.

Categories

     

    Clinical Trials & Research Platforms

    Global registries and tools for exploring ongoing studies and real‑world treatment data.

    CureID 

    CureID is an FDA and NCATS platform where clinicians and patients share real‑world experiences using existing drugs to treat rare or difficult‑to‑treat diseases.

    Emotional Well‑Being & Trauma Support

    Resources supporting communication, mental health, and trauma awareness.

    Helpful Hints for Delivering a Rare Disease Diagnosis

    This guide offers clinicians practical, empathetic strategies for delivering a rare disease diagnosis, based on insights from EURORDIS.

    Mental Well-being

    The EURORDIS Mental Well‑being page offers resources to support the emotional health of people living with rare diseases and their caregivers.

    Medical Trauma / Medical PTSD

    This International Society for Traumatic Stress Studies fact sheet explains the psychological and physical effects of distressing medical experiences and why recognizing medical trauma supports healing.

    Educational & Training Tools

    Interactive or visual resources that support learning and clinical skill development.

    ERN-EYE

    Best Practices and Empathy in Patient Care

    This interactive game places you in the role of a doctor across 15 scenes, where your choices influence “best practices” and “empathy” gauges. Each scene ends with key teaching points to strengthen compassionate patient care.

    EYE SYDNEY EYE HOSPITAL

    PCR Test Process

    This animated video from Sydney Eye Hospital explains the PCR test process for corneal scrapings, guiding viewers through each step of the protocol used in ocular diagnostics.