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Our Founder, Juliette Vila Sinclair Spence, spoke at the World EPA Congress in Amsterdam on March 12-13, 2024. She was a part of a distinguished group of professionals, including Durhane Wong-Rieger (Canadian Organization for Rare Disorders), Lorenzo Capretto (Chiesi Global Rare Diseases), Christine Mossa (Ipsen), Michela Pantaleoni (Napo Therapeutics), and Sandrine Ruiz (Immunocore). Together, they discussed the obstacles and solutions to medicine access for patients with rare diseases.

From June 29th to July 1st, the SICSSO Congress was held in Sicily, Italy, bringing together a plethora of esteemed eye experts from around the world. Our founder, Juliette Vila Sinclair Spence, had the privilege of joining the ranks of clinical experts, including Elmer Tu from the University of Illinois in Chicago, US, Edward J. Holland from the Cincinnati Eye Institute in the US, Karl Anders Knutsson from Ospedale San Raffaele in Italy, Vincenzo Sarnicola, the honorary president of SICSSO in Italy, Enrica Sarnicola, the scientific secretariat of SICCSO in Italy, and Mor Dickman from MUMC+ in the Netherlands.

Juliette Vila Sinclair-Spence, the founder of the Acanthamoeba Keratitis Eye Foundation, recently appeared at a fundraiser organized by Avanzanite Bioscience as a patient advocate and representative of the foundation. During the event, she shared her personal experience with the rare eye infection and explained the foundation’s goals and objectives. The event raised a total of 4,150.00 EUR for the foundation, with an additional contribution of 1,000.00 EUR from SIFI.