March 2024 – Our Founder, Juliette Vila Sinclair Spence, represented the Acanthamoeba Keratitis Eye Foundation at the World EPA Congress in Amsterdam on March 12-13, 2024. She joined a distinguished panel of experts, including Durhane Wong-Rieger (Canadian Organization for Rare Disorders), Lorenzo Capretto (Chiesi Global Rare Diseases), Christine Mossa (Ipsen), Michela Pantaleoni (Napo Therapeutics), and Sandrine Ruiz (Immunocore).
This global event brought together leaders from patient advocacy, industry, and regulatory sectors to discuss advancements in rare diseases, patient engagement, and access to innovative treatments. Juliette shared her expertise and patient advocacy perspective, highlighting the importance of awareness, research, and support for those affected by Acanthamoeba Keratitis (AK).
The AK Eye Foundation continues to be a voice for AK patients, ensuring their challenges and needs are recognized on international platforms.
