December 2025

The Acanthamoeba Keratitis Eye Foundation is proud to support Siân John, Health Psychology postgraduate and AK survivor, in leading the first‑ever study to capture the psychological impact of Acanthamoeba Keratitis (AK) through open‑ended patient narratives. This pioneering research seeks to ensure that the lived experiences of AK patients inform healthcare professionals, researchers, and policymakers.

Who Can Take Part

• Patients: Adults aged 18+ with a confirmed AK diagnosis

What’s Involved

• A 30‑minute online survey
• Open‑ended questions inviting patients to share their experiences in their own words
• Participation is voluntary and confidential
• Insights will generate real‑world evidence to guide awareness, education, and future care pathways

Why Participate

• Share your personal story to highlight the psychological impact of AK
• Ensure patient perspectives are represented in research and healthcare decision‑making
• Contribute to shaping better care and support for AK patients worldwide

For Healthcare Professionals

• Share this survey with your AK patients
• Help connect patients to this study and amplify their voices
• Support the development of patient‑informed care pathways

If you have any questions before agreeing to take part or any enquiries, please email Siân John  Sian.John@live.uwe.ac.uk