Survey on Keratitis and Quality of Life: Your Voice Matters
July 2025Â
Researchers led by Professor Konrad Pesudovs and collaborators, including Assoc. Professor Constantinos Petsoglou, Dr. Cameron McLintock, Assoc. Professor Andrew White, and others, are conducting a study to understand how keratitis affects quality of life. The aim is to develop a validated tool that measures the impact of keratitis on patients’ daily lives.
The Acanthamoeba Keratitis Eye Foundation is supporting this study by providing visibility and sharing the survey within our patient group and network. Our role is to amplify its reach and ensure that patient voices are represented.
Who Can Take Part
- Keratitis patients: 18 years and above, English-speaking
What’s Involved
- Online, self-administered questionnaire (~1 hour 20 minutes)
- Covers experiences over the past month, including:
- General, ocular, and visual symptoms
- Activity limitations and mobility
- Lighting conditions and driving
- Emotional well-being and health concerns
- Social well-being and inconvenience
- Economic impact and coping mechanisms
- You may complete all or part of the questionnaire at your own pace
- Submit responses at the end to complete participation
- All responses are confidential — there are no right or wrong answers
Why Participate
- Share your experiences to improve care and support for keratitis patients
- Help researchers develop a validated quality-of-life tool
- Contribute to better outcomes for current and future patients
Your input will help researchers better understand the full impact of keratitis on patients’ lives and improve care and support services.
IIf you have any questions before agreeing to take part or need assitance, please email Haile Alemu — h.alemu@unsw.edu.au
