PATIENT STORIES
A collection of patient stories about AK showcases resilience, courage, and community strength. Engaging with these narratives through watching, listening, or reading can provide comfort and inspiration. Joining one of our support groups offers a safe space for sharing experiences and gaining insights. Together, a network of care and compassion can uplift individuals facing AK challenges.
VIDEOS
@piercetheem Bringing awareness to Acanthamoeba Keratitis 🖤🖤🖤 #acanthamoeba #amoeba #eye #contacts #AK #transplant #optometry #opthalmology
♬ original sound - PierceTheEm
@katelynn_amador I can’t believe I made it out of the darkest time in my life. Acanthamoeba Keratitis took over my ENTIRE life for months and I mean ENTIRE life. I could no longer work, drive, exercise, I couldn’t even step outside. It was a constant 24 hour extreme pain. For those who don’t know, Acanthamoeba Keratitis is a parasitic cornea infection mostly caused by swimming or showering in contacts. I did both of those things not knowing the risks whatsoever and this was my result. PLEASE do not swim or shower in contacts. I had no idea Acanthamoeba Keratitis was even a thing until it took over my life. I still don’t have my full vision back in my right eye because my cornea is now scarred but honestly I am just happy that the pain is finally over. #acanthamoebakeratitis #acanthamoeba #acanthamoebasymptoms #corneainfection #corneascars #eyeinfection #contactlens
♬ Keeping Your Head Up (Jonas Blue Remix) [Radio Edit] - Birdy
Swimming with
contact lenses
changed my life
Keep water
away from
contact lenses
So much pain
I wanted to
pull my eye it out
Storing my
contact lenses
in water
Rinsing my
contact lenses
in water
PODCASTS
I would have never believed my story if I didn't go through it
A patient's perspective
It's like putting a cigarette in your eye
World EPA congress 2023 special
The patient journey
ARTICLES
I’m 26 and Almost Lost My Eye After Showering in My Contacts (2024) Read more
Man takes a quick nap with contact lenses on, wakes up losing right eye to flesh-eating parasite (2023) Read more
A Patient’s Perspective on Acanthamoeba Keratitis (2022) Read more
Meet The Boston Violinist Playing Her Heart Out While Losing Her Eyesight (2021) Read more
Touching my contact lens with a wet hand left me blind in one eye’: Nanny, 24, reveals how a parasite found in tap water was to blame for her shocking sight loss (2020) Read more
Canadian blinded by water-borne parasite outraged by medication cost (2019) Read more
Sydney mother-of-two told she would go blind after contracting eye parasite (2019) Read more
Wellington woman fights back after losing sight in one eye to rare disease (2018) Read more
Woman Contracts Cornea-Eating Parasite After Swimming Wearing Contacts (2018) Read more
Contact lens parasite left woman paralysed and blinded (2017) Read more
I was blinded by my contact lens (2017) Read more