Projects Driving Change by Patient Voices

Projects shaped by lived experience and focused on real‑world impact

Our projects begin with the insights of those directly affected. Each initiative is built to raise awareness, strengthen research, and improve outcomes. By amplifying patient voices and sharing knowledge, we work with partners and communities to create meaningful, lasting change.

RESEARCH

Psychological Impact of AK

Open‑ended study on AK’s psychological impact empowers patient voices, shaping care through lived experience and awareness.

RESEARCH

Keratitis & Quality of Life

Study measuring keratitis impact on daily life and wellbeing, revealing overlooked patient challenges.

RESEARCH

Impact and Costs of AK

Study explores AK’s financial, emotional, and social burdens, building evidence beyond bills to daily impact on the patient.

WHITE PAPER

Global Alliance Against AK

White paper unites experts and patient voices, advancing AK awareness, prevention, treatment, support, and future care.