testimonials

Swimming with contact lenses

Acanthamoeba Keratitis (AK) is affecting many lives worldwide, not only the person suffering from it, but their families, friends, and co-workers.

Below a collection of patient stories and testimonials from AK Warriors and the impact in their life.

If you are going through AK, you are not alone,  join our  support group.

I Would have Never Believed my Story if I didn't go Through it

by Cowboys not Eggheads by Sam Fischer | Interview with Tiffany Zeleny an AK Warrior sharing her patient's perspective on Acanthamoeba Keratitis.

A Patient's Perspective on Acanthamoeba Keratitis

by Kristin White, OD Kristin White, OD for Eyes on EyeCare | Interview with Juliette Vila Sinclair Spence on Acanthamoeba Keratitis Patient's Perspective

World EPA Congress 2023 Special

by P4A Let's Talk Rare By Partners4Access | Interview with Juliette Vila Sinclair Spence on Acanthamoeba Keratitis Patient's Perspective

The patient journey | Acanthamoeba keratitis

by Guy Lacey, Manager at FIECON | Interview with AK Warrior Juliette Vila Sinclair Spence sharing her patient's perspective on Acanthamoeba Keratitis.

So much pain I wanted
to pull my eye it out.

Keep water away from
your contact lenses.

I stored my contact lenses
in water.

Rinsing my contact lenses
case in water.

I took a quick nap and a flesh eating parasite left me blind in one eye
(2023)
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A journey I will never forget:
CL + H2O = AK
(2022)
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The Boston Violinist Playing Her Heart Out While Losing Her Eyesight
 (2021)
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‘I created the NPO Eyes2Eyes after interview helped save my eyesight’
(2021)
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Touching my contact lens
with a wet hand left me
blind in one eye
(2020)
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Edinburgh woman raising awareness of dangers of poor contact lens habits
(2020)
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Canadian blinded by water-borne parasite outraged by medication cost
(2019)
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Sydney mother-of-two told she would go blind after contracting eye parasite
(2019)
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Woman fights back after losing sight in one eye to rare disease
(2018)
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Woman Contracts Parasite After Swimming Wearing Contacts
(2018)
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Contact lens parasite left woman paralysed and blinded
(2017)
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I was blinded by my contact lenses
(2017)
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