testimonials

Acanthamoeba Keratitis (AK) is affecting many lives worldwide. The overwhelming suffering stops life completely for the patient and is also very challenging for their family, friends and co-workers.

This collection of patient stories let you feel the impact of AK. Read, listen or watch here some testimonials:

If you are going through AK, you are not alone,  join a support group.

It's like putting a cigarette in your eye

by by Freddie van Rensburg from Eyes 2 Eyes Foundation | Interview with Juliette Vila Sinclair Spence, sharing her journey and drive to start the AK Eye Foundation.

A patient's perspective

by Kristin White, OD Kristin White, OD for Eyes on EyeCare | Interview with Juliette Vila Sinclair Spence.

I would have never believed my story if I didn't go through it

by Cowboys not Eggheads by Sam Fischer | Interview with Tiffany Zeleny, sharing her patient's perspective on AK.

World EPA congress 2023 special

by P4A Let's Talk Rare By Partners4Access | Interview with Juliette Vila Sinclair Spence on AK patient's perspective.

The patient journey

by Guy Lacey, Manager at FIECON | Interview with Juliette Vila Sinclair Spence.

So much pain
I wanted to
pull my eye it out

Keep water
away
from
contact lenses

Storing my
contact lenses
in water

Rinsing my
contact lenses
in water

Swimming with
contact lenses
changed my life

I took a quick nap and a flesh eating parasite left me blind in one eye (2023)
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A journey I will never forget: CL + H2O = AK (2022)
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The Boston violinist playing her heart out while losing her eyesight (2021)
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‘I created the NPO Eyes2Eyes after interview helped save my eyesight’ (2021)
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Touching my contact lens with a wet hand left me blind in one eye (2020)
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Edinburgh woman raising awareness of dangers of poor contact lens habits (2020)
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Canadian blinded by water-borne parasite outraged by medication cost (2019)
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Sydney mother-of-two told she would go blind after contracting eye parasite (2019)
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Woman fights back after losing sight in one eye to rare disease (2018)
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Woman contracts parasite after swimming wearing contacts (2018)
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Contact lens parasite left woman paralysed and blinded (2017)
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I was blinded by my contact lenses (2017)
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