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ACANTHAMOEBA KERATITIS
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We are proud to become a member of Eurordis – Rare Diseases Europe which is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
In this interview with our Founder Juliette Vila Sinclair Spence, she is given the opportunity as an “AK Warrior” and true AK expert to share the story as well as others AK Warrior of their long and arduous journey to diagnosis, treatment and aftermath this eye rare disease has an impact on them.
Patient’s perspective should become the new standard in any disease and special on a rare disease like Acanthamoeba Keratitis.
What We Do
Provide information
On this website you can find more about what is Acanthamoeba Keratitis, useful information for AK Warriors (Patients) and and latest news in regard to AK.
Provide SUPPORT
A Facebook Support Group for AK Warriors as well as for the Family, Friends, Optometrist, Researcher or any interested in learning about the impact.
Remember no matter where you live, how old you are or what kind of contact lenses you wear, AK (Acanthamoeba Keratitis) can get in your eye!
So please do not assume it will not be you. Water and Contact lenses don’t mix #waterandcontactsdontmix (meaning: never shower, swim, wash or store them in water, and touch them with wet hands).
Juliette Vila Sinclair Spence
Founder & Chairwoman
AK Warrior and Patient Advocate
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