Preventing Through Education
Empowering Patients
Improving Care Worldwide

Patient Perspective

Why listening to patients leads to better AK care.

AK is traumatic and often misunderstood. Listening to patients is essential for better understanding, care and real change.

“I wish I had never experienced AK. I didn’t know that contact lenses and water don’t mix, and I couldn’t find the support I needed. No AK warrior should feel alone. Patients deserve knowledge, doctors need to understand our perspective, and every contact lens user should know how to protect their sight.”

Juliette Vila Sinclair – Spence

Did You Know?

Contact lens wearers face a risk of Acanthamoeba Keratitis (AK) — and 80% are misdiagnosed.

A clear, shareable flyer with the Top 10 Facts, created to bring the patient perspective to every stakeholder health‑care professionals, insurances, regulators, public‑health agencies, universities and others helping close gaps in recognition, referral, diagnosis, and support. Available in multiple languages.

Contact Lens Safety Guide

A must‑have guide if you wear — or know someone who wears — contact lenses.

Practical, clinically reviewed guidance for contact lens users — part of a global community of over 150 million wearers. Ideal for clinics, optical shops, schools, and community programs. Help your community reduce infection risks with clear, easy‑to‑use A4 sheets. Available in multiple languages.

How You Can Help

Every action makes a difference. Whether you give, partner, volunteer, or simply share our message, you help us raise awareness, support patients, and protect sight. Choose the way that fits you best.

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Partners

Working together to advance global eye health, rare‑disease awareness, and patient support.