Preventing Through Education
Empowering Patients
Improving Care Worldwide

Patient Perspective

Why listening to patients leads to better AK care.

AK is traumatic and often misunderstood. Listening to patients is essential for better understanding, care and real change.

“I wish I had never experienced AK. I didn’t know that contact lenses and water don’t mix, and I couldn’t find the support I needed. No AK warrior should feel alone. Patients deserve knowledge, doctors need to understand our perspective, and every contact lens user should know how to protect their sight.”

Juliette Vila Sinclair – Spence

10 Facts To Know About Acanthamoeba Keratitis

Contact lens wearers are at risk of Acanthamoeba Keratitis (AK) — and 80% are misdiagnosed.
This Top 10 Facts flyer shares the patient perspective, helping stakeholders improve recognition, referral, diagnosis, and support.
Available in multiple languages.

Safety Tips to Help Prevent Acanthamoeba Keratitis

A practical, clinically reviewed guide for safe contact lens use.
These clear A4 safety tips help contact lens wearers reduce infection risks through simple, evidence‑based habits.
Available in multiple languages.

How You Can Help

Every action makes a difference. Whether you give, partner, volunteer, or simply share our message, you help us raise awareness, support patients, and protect sight. Choose the way that fits you best.

Donate

Sponsor

Volunteer

Awareness

Partners

Working together to advance global eye health, rare‑disease awareness, and patient support.