About us
Learn who we are and why we care
The Acanthamoeba Keratitis (AK) Eye Foundation was created to bring clarity, support, and reliable information to a community that has long been overlooked. Founded in 2022 by Juliette Vila Sinclair Spence after her own experience with AK, the foundation has grown into the first global organization dedicated solely to Acanthamoeba Keratitis.
Our Mission
Our mission is to bring the patient perspective forward — because only patients truly know what is needed, what has been missed, and what must change. What began as one patient’s advocacy has grown into a global effort to amplify the patient voice, improve understanding, and build a community of hope and connection. We collaborate with local patient advocates and partner foundations around the world to support awareness, education, and prevention of Acanthamoeba Keratitis.
Our Goals
Awareness
Raising global awareness of AK and amplifying the patient perspective.
Education
To provide a hub of information about diagnosis, treatment and prevention.
support
To offer support to AK patients, family and friends accross the world.
Board
Juliette Vila Sinclair Spence
Marco Schraven
Advisory Board
John KG Dart, MA, DM, FRCOphth
Taher Eleiwa, MBBS, PhD
Thomas L. Steinemann, M.D.
Zachary Reynard, OD, FAAO
Christopher A. Rice, PhD
Neil Lagali, PhD

