ABOUT US

Our story

The Acanthamoeba Keratitis (AK) Eye Foundation was founded on March 22 of 2022 by our Founder and Chairman Juliette Vila Sinclair Spence an AK Warrior, who life changed end February 2017 due to the rare eye disease named Acanthamoeba Keratitis (AK). Based on her experience and what she saw on others worldwide – a real gap in information, non-standardize diagnose and treatment, nor support and research in regard to AK – she made her mission to become an AK Patient Advocate by giving it a voice, a face and felt inspired to create the first worldwide foundation focused 100% in this rare disease Acanthamoeba Keratitis.

Mission & Goal

Our mission

Create global awareness by educating contact lenses users, medical communities and any other stakeholder involved in the process about Acanthamoeba keratitis (AK), a rare disease that contact lens users are at higher risks of obtaining, mainly due to the association with contact lenses and water.

our goal

  • Providing material / tools / trainings  to prevent, diagnosed and support.
  • Educating medical communities about the impact AK has on an AK Warriors (pain, mental, financial)
  • Investing in research
  • Sponsoring

What We Do

Provide information

Provide a platform on click away about Acanthamoeba Keratitis to share general knowledge, useful information for AK Warriors (Patients) and efforts to educate contact lens users and eye professionals.

Provide SUPPORT

Provide a Support Group in Facebook for AK Warriors as no one should go through this journey alone, as well as for the Family, Friends, Optometrist, Research or any interested in learning the impact.

Who Are We

Juliette Vila Sinclair Spence

Founder & Chairwoman
Juliette is a passionate AK Warrior and Patient Advocate as well as the Founder and Chairman of Acanthamoeba Keratitis (AK) Eye Foundation. She brings personal and first-hand experience of what it means to be affected by Acanthamoeba Keratitis as well as its aftermath. She has created a platform Acanthamoeba Keratitis Information with key information on Acanthamoeba Keratitis as well as the Facebook Support Group to support others going through this journey as well as their love ones. Juliette not only brings her passion and determination to make a difference, but also her multicultural background, project management and marketing communication skills expertise to the foundation.

Marco Schraven

Treasurer
Marco is the partner of Juliette. Appointed treasurer of the Acanthamoeba Keratitis Eye Foundation. Seeing the destructive nature of this horrible eye rare disease up-close and the impact in their family, he is as committed to the cause as his partner. Beside acting as treasurer he also handles all IT related issues. He has a track record of 30 years in the financial industry mainly in debt collection, domestic and international. Working now as a manager ICT in the same industry.